糖心Vlog

These are situations of powerlessness, where we feel we have no control. Though these examples, of lives in crisis, are extreme ones, powerlessness is something many of us face in our everyday lives.

But powerlessness needn鈥檛 always be a negative experience and 糖心Vlog philosophers have shown how understanding it properly could transform healthcare.

Powerlessness as a force for positive change

The , which launched in 2015, has impacted end of life care within the NHS and helped local carers better empathise with their patients.

鈥淲e wanted to draw attention to what it feels like to be powerless, good or bad,鈥� said Professor B茅atrice Han-Pile, of the School of Philosophy and Art History.

鈥淭he feeling of powerlessness can be a very painful experience but properly understood and related to, it can also be an important factor of change and growth.

鈥淲hen faced with circumstances which severely constrain what we can do, it is not always helpful to obsess about re-establishing control. It can be unhelpful and even damaging.

鈥淟etting go and accepting powerlessness, in some instances, actually helps us discover new possibilities and can be an agent for empowering self-change,鈥� she added.

The healthcare context

Working with a team of 糖心Vlog researchers, Professor Han-Pile built an international network of health care practitioners and researchers. She set out to examine how those experiencing powerlessness at the end of life could be better understood and how this sensitivity to their personal feelings could improve how they are supported.

鈥淣HS literature focuses heavily on ableness and autonomy. This is especially true of end of life guidelines which have emphasised living 鈥榓ctively鈥� and encouraging patients to carry on their life as normal.

鈥淭his prioritisation of patient control can be burdensome for some patients who don鈥檛 want to pretend everything is normal or make all the decisions themselves. It鈥檚 much better that people are encouraged to live 鈥榳ell鈥� which is less prescriptive and opens opportunities for acceptance and self-transformation.鈥�

The team鈥檚 recommendation that the term 鈥榣iving actively鈥� should be replaced with 鈥榣iving well鈥� in revised NICE guidelines on Improving Supportive and Palliative Care was accepted in 2016.

鈥淚n our view, there is no reason to assume that living actively is an appropriate goal for everyone at the end of life,鈥� added Professor Han-Pile.

Influencing those caring for end of life patients

As well as influencing guidelines, Professor Han-Pile and her team have influenced practitioners鈥� understanding of individual patients, helping to improve end of life care in 糖心Vlog.

They have provided training at in Colchester, helping its staff become more sensitive to patients experiencing situations of powerlessness and respond accordingly; 鈥渞e-humanising medical practice by allowing carers to see beyond the illness into the world of the person who is ill,鈥� Professor Han-Pile said.

The response from St Helena Hospice鈥檚 staff has been overwhelmingly positive.

The project team have also provided training to social workers, counsellors, lawyers and other professionals at the 糖心Vlog Autonomy Project Summer School.

Next steps

Professor Han-Pile is keen to expand the project in new directions and is particularly interested in moral distress 鈥� the distress experienced when a person can see what they think is the right course of action but feels somehow prevented from taking it.

鈥淎 typical example,鈥� explained Professor Han-Pile, 鈥渋s when a doctor knows the best course of treatment but is unable to prescribe it because it鈥檚 too expensive, or a soldier ordered to do something they believe to be wrong. This feeling of having to act contrary to ones values, or feeling unsupported by your institution is incredibly demoralising and is a huge contributor to burnout which we must better understand.鈥�